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Showing posts with label mental health. Show all posts
Showing posts with label mental health. Show all posts

Sunday, 27 March 2016

A s**tty, dumpster diving, ambulance ride kind of day.

Some days just don't go as well as planned, or hoped for, and in the life of special needs parenting the realities of life can be quite different than what most people experience in a given day.  I don't know if it's the recent full moon or what but some of the children in this house have been way off, and their behaviours have just been bizarre.

Yesterday morning when walking into the youngest boys room there was the undeniable smell of feces, the stench was way worse than anytime they have both soiled their diapers overnight.  It did not take much investigation to determine a certain young man had been extremely creative with his feces, he had thrown it and it was stuck to the ceiling, he had finger painted everywhere with it - on/in his bed, on all of the walls, all over the carpet, on the door, on himself and all over his brother and his brothers bed.  There was feces everywhere, it is actually hard to believe that all that feces came from one small child.  I then started the cleanup which started with bathing the 2 young boys - both have severe sensory issues and bathing them is similar to trying to bath a feral cat.  Then onto the clean up, all the walls and ceiling needed to be sanitized.  All the bedding was put into the washer on the sanitary cycle and it was determined both mattresses were beyond ever being cleaned and needed to be replaced.  The carpet cleaner we were planning on buying in the future was also needed immediately to make the room habitable once again.  While all this was happening you would expect that the guilty party would be remorseful or even realize what he did was wrong but this child does not comprehend this at all.

Even after all of this, you should never think "your day can't get any worse or more bizarre" because around here an adult child, after eating a very large lunch is caught going through the dumpster, looking for food and then caught eating food that has gone bad.  He is not eating said food because there is a shortage or because he is hungry, it's because of his lack of impulse control.....he saw it so he must do it.

During all the day's events I was also receiving texts from another adult that struggles with mental health issues, especially when a stressful situation happens, and today he got a phone call regarding his outstanding phone bill.  This stressful situation resulted in texts throughout the day like Ï am done with life", "nothing in my life works out", "home and safe", etc.  Knowing that he can overwhelm extremely easily I respond with very simple, positive responses as that is all he is able to take in.  I tell him to use his tax return money to pay his phone bill, a simple manageable solution.  When I return home from purchasing the new mattresses and carpet cleaner, I ask him about his day?  He is still worked up and has a complete meltdown.  Hitting himself, clawing at his face, crying, destroying his sunglasses and saying he wants to kill himself.  I ensure all the younger children stay downstairs watching a movie with their older sister so we can deal with this young man without scaring anyone.  As he says he wants to kill himself, hubby phones for support, and the police and ambulance arrive quickly.  He agrees to going to the hospital and seeking more help (he has already been seeing mental health and getting support for a while now).  We call our amazing and very supportive respite provider and she comes to watch the younger kids, hubby continues with the planned activities with the older kids, and I spend the evening at the hospital helping our son be heard while he seeks more professional help.  Before leaving for the hospital I take time to ensure everyone is okay, the younger kids don't seem to notice that their brother left in the ambulance between the movie and excitment of the babysitter coming over and I talk with the older children as to why their brother is going for more help.

After all of this our son is released from the hospital with a new plan.  We are both starving so we grab take out, I send our son in to get the food so I have time to phone hubby taking time to lean on each other for support.  With these kinds of days, which fortunately don't happen often, it is important that hubby and I take time to look after ourselves and our relationship.  It's also a huge relief that we have built supports and plans that work to help us through these situations reducing the stress for everyone involved.  

Tuesday, 7 April 2015

NO REALLY, SHE'S NOT!!!!

"Oh she is so sweet" have become the words that irritate me beyond belief.  Our daughter has FASD, low cognitive function and seems to be developing some severe mental health issues, doctors are leaning towards a diagnosis of schizophrenia.  As we are the people around her constantly, we get the brunt of her mood swings and it is especially irritating when we have been verbally attacked for weeks from her and then someone who doesn't know us that well says " I was talking with....she is just so sweet".  Comments like these make me want to scream NO REALLY, SHE'S NOT!!!!

It's not that I don't want people to see the nice side of her or to have positve thoughts about her.  It's that we haven't seen that side of her for a long while and would love to have a break from the crazy making.  When you add a mental health low with PMS everyone should run for the hills!  I want to run for the hills but can't get away.

Working with her physicians and mental health team we have been making progress at helping her however it is just as important (if not more important) to help ourselves and the rest of the family.  If the rest of the family isn't strong and well cared for we won't have the strength to support the ones affected by mental illness.


1. Accept your own feelings and know that you are not alone.
It is natural to feel many different emotions when a loved one has a mental illness.  Other people experience the same challenges and complicated mix of emotions.  Let yourself and family feel whatever they need to feel.

2. Learn more
Take time to learn more about mental illness.  This will give you a better understanding of your loved one's experiences and help you see what they may be going through.

3.  Stay connected
Embarrassment, social stigma and fear can stop many family memebers from seeking help when a loved one has a mental illness.  But that can isolate you at a time when you need the most support from others.  Talk to trusted friends and family and let them know what you're experiencing.

4. Join a support group
Support groups are a good place to share your experiences, learn from others, and connect with people who understand what you're going through.  Find the support that works for you, it could be a group of friends, a support group or a counsellor.

5. Take time for yourself
If you are caring for a loved one, your responsibilities may use up your physical and emotional energy.  It's important to take time for yourself and the other members of the family.  It can help you recharge and give you a more balanced perspective toward any challenges you experience.  Schedule opportunities that allow you to relax, have fun and get away so you can come back to your loved one with a healthier outlook.  You can't care for someone else if you haven't cared for yourself first.

6.Seek help for yourself
Caring for a loved one who's unwell can be stressful.  Seek help if you find your own well-being slipping, and encourage family members to seek help if they need it.  Mental illness can have a big impact on family relationships.

7. Develop coping strategies for challenging behaviours
There may be times when a loved one shows strange or challenging behaviours that can make you feel confused, embarrassed, or scared.  This can happen in public or in private.
- Make a plan as a family how to best deal with situations
- Understand that their behaviour is not personal, even when it feels personal.

Tuesday, 17 February 2015

Tonight's evening has a "Publication Ban"


The balancing act of parenting seems to take more effort for our family as the gap between ages and needs becomes more evident.  Having a large family comprised of both adoptive children with many special needs and birth children the gaps between their abilities seems to increase over the years. 

13 years ago when we adopted for the first time we had 5 biological children ranging in age from 5-12 and the 2 we adopted first were 6 and 11.  At that time both presented with delays but the 11 year old was functioning higher than our then youngest and the children and their differing abilities blended together.  As life evolved we adopted multiple times and the differing abilities tended to blend together up until we adopted our youngest 7, and around the same time that our older children were becoming adults. 

Now that some of our children have become adults the gaps have really become evident.  We have adult children that have graduated college or are attending college/university, ones living on their own, married and with children.  We also have adults that live at home, need a care provider when we are out, need reminders for....well almost everthing, have extreme behaviour challenges, developing mental health issues, etc.  We have adult children that require more supervision now than when they were adopted, due to later onset mental health issues, and they require more supervision than our 3 year old (with significant delays).  We also have our youngest sibling group which have abilities that you would expect for children 10 years old and younger. 

One challenge we have been finding lately is when we are planning an activity with the adult children, not everyone functions as an adult.  Sometimes we want a drama free adult evening or activity were we can all have fun together.  We don't always want to deal with the constant stress and mental health challenges.  Sometimes the adult kids want their Mom and Dad, sometimes they want an activity were they are the center of attention, sometimes we just all need a break.  Don't get me wrong, we truly love all of the family, and the majority of the family activities include everyone, however sometimes not everyone is invited.  We also understand that the individuals in the family with these extra challenges don't have control over some of their issues and if they thought that they are causing stress for us or that we needed a break from them it would upset them.

Recently we had a group gathering with some of the family and everyone that was attending was discrete about attending.  Everyone that attended left home at different times, with different stories about where they were going, the babysitter didn't even know that everyone was together.  We imposed a publication ban on any pictures that were taken.  We feel bad that we need to sneak out but also need to consider everyone else's feelings.  How would you handle this?  Would you have an all or none approach, risking adults refusing to attend?  Would you add further stress to the adults suffering already with special needs and mental health issues and tell them the family needs a break from them?